03 July 2023 15:30 – 16:30
1. Opening and adoption of agenda
2. Minutes of meeting of 09 March 2023
3. Work programme CSO
4. Work programme DCEDIY
5. Cross-cohort matters
6. AOB
7. Close
Attendees:
Mr McMahon opened and welcomed everyone to the meeting.
The agenda was adopted without amendment.
Minutes of the GUI Bilateral Steering Group meeting on 09 March 2023 were taken as approved.
Review of actions agreed from 09 March 2023 meeting:
| Action | Owner | Update |
|---|---|---|
| Circulate update on sampling plan | Ms O'Riordan | Completed - update given at meeting |
| Provide material on policy use of GUI data for inclusion in interviewer training | Dr Visser | Completed - material provided |
| Conclude MoU sign off process | Dr Visser/Ms Roche | Completed - MoU signed off 10 March 2023 |
| Prepare outline of proposal on data confidentiality | Dr Farrell/C Dooly (CSO) | To be completed |
| Circulate version of nested study protocol from GUI Phases 1/2 | Dr Farrell | Completed - material circulated |
Mr Doolan presented on:
Agreed to add the GUI Governance structure, outlined in Mr Doolan's presentation, to the Governance Documentation.
Ms Roche presented on:
Ms McGarrigle thanked the CSO for work to date.
Dr Murray presented on:
Agreed to send on publications from the launch of the key findings of Cohort'08@13.
Dr Farrell presented on:
Mr McMahon thanked DCEDIY for all the work and noted the importance of all the international collaboration in both DCEDIY and CSO.
5a. Communications/events
Mr McMahon noted the good communications and collaboration across the group.
Mr McMahon noted the introduction of SharePoint in the coming months to CSO and advised that there could be scope to use this platform for information sharing purposes between CSO and DCEDIY.
Ms McGarrigle noted the usefulness of meetings like this for communications and suggested the Dept. could lead on setting out future communication plans.
Ms McKevitt noted the following events:
5b. Confidentiality Working Group
Mr McMahon to discuss with Mr Dooly from CSO regarding drafting a scoping document on the way forward so that DCEDIY can draft Statutory Instrument on data confidentiality.
5c. Ethics structures
Dr Farrell advised that an Interim Research Ethics Committee has been set up and is chaired by Anne Cleary.
The Dept. undertook to :
6a. Change of date for September meeting (CSO Cork)
Agreed ot meet at 11:30am, 21st September, 2023 in CSO Cork
6b. Dr Farrell informed the steering group that she will be moving to a new role within DCEDIY and will no longer be working on GUI. The GUI Bilateral Steering Group thanked Dr Farrell for her many years of work on GUI.
6c. Estimates 2024
Ms McGarrigle noted that the estimates process has begun for 2024 and that, as per the MoU, the CSO and Dept. would make separate submissions regarding the funding of GUi in line with our respective work allocations.
Mr McMahon concluded the meeting, again thanking Dr Farrell for all her great work on GUI.
| Action | Owner |
|---|---|
| Mr McMahon to discuss with Mr Dooly: Draft scoping document on data confidentiality | Mr McMahon |
| Hard copy publications on Key Findings to be forwarded to CSO | Dr Murray |
| Communications Protocol to be drafted and circulated in advance of next meeting for discussion | Ms McGarrigle |
| Invitation to international conference by French longitudinal study to be forwarded | Ms McKevitt |
| Cohort'24 questionnaires to be sent to Dr Farrell in context of ethics observations | Ms Roche/Dr Farrell |
| Research Needs Report for Cohort'08@17 to be submitted to Interim Research Ethics Committee | Dr Farrell |
| CSO project structure to be inserted in the Governance Framework Document | Ms Roche |