The topics included in the well-being and social inclusion module, and the modules to follow, will be asked of the participants who meet the disability threshold. Certain topics will not be included for proxy responders or within the child questionnaire. This is because well-being measures are often subjective, meaning they need to be answered by the person themselves.
The well-being and social inclusion module will include topics on:
There was considerable interest in the well-being and social inclusion module, and many topics were deprioritised to ensure the module wasn’t overly burdensome for participants and to reduce overlapping topics. There were requests to collect information on resilience, feeling independent, self-esteem, and feelings of personal fulfilment. These topics were deprioritised as they ranked lower than topics retained for inclusion.
It was agreed that other topics, such as income adequacy and additional detail on experiences of discrimination (such as the frequency of occurrence), would be better explored in other CSO surveys such as the Survey on Income and Living Conditions or the Equality and Discrimination Survey.
There were requests for the survey to collect more information on autonomy, the ability to make life changes if desired, and the one-good-adult concept. While we recognise that these would provide valuable information, such topics would require a significant number of questions and would add greatly to response burden. There was also interest for the survey to collect information on the impact of adverse events such as climate change, storms, and COVID-19. We recognise that these are interesting areas of research, however it may be better suited to qualitative research, as the sample sizes would be too small for a national survey.
There was some interest in collecting information on parental experiences, such as experiences as a disabled parent, attitudes of others towards parental ability, and detail on the parent-child relationship. It was agreed this topic would require a significant number of questions to fully explore and may be better suited to its own piece of research or separate module in the future.
Unlike the 2006 survey, the survey will not be including questions on the level of stamina, smoking status, or general feelings of trust in other people. Removing topics will make room for other new content.